TRACK 1

Research

Dr. Francesco Bonella

Healthcare Professional

Dr. Bonella is Associate Professor of Medicine and Head of the Division for Interstitial and Rare Lung Disease, Department of Pneumology at the Ruhrlandklinik University Hospital in Essen, Germany. He is also the Head of the Scientific Advisory Board of EU-IPFF.

Steve Jones

Patient Representative

Steve Jones is the Chair of Action for Pulmonary Fibrosis, UK. He suffered from IPF for eight years before receiving a lung transplant in 2016. During his professional life, he worked as an adviser to the European Union, World Bank and other agencies on development programmes in Asia and Africa. He is an EU-IPFF Executive Board Member.

TRACK 2

Person-Centered Care

Anne Marie Russell

Healthcare Professional

Anne-Marie is a post-doctoral researcher at Imperial College Healthcare NHS Trust London. Her research interests are in patient centredness, health metrics and fibrotic lung conditions. Projects include exploring the validation and translation of the 12-item patient-reported outcome measure for patients with idiopathic pulmonary fibrosis (IPF-PRoM© 2018 Imperial Innovations). Anne-Marie represents ILD nursing interests at international committees including the EU-IPFF.

Klaus Geissler

Patient Representative

Klaus is the representative to EU-IPFF from the German Lungenribrose e.V. In 2012, he was diagnosed with IPF and has since gathered information about the management of this disease and the patient advocacy landscape in Europe. He is also supporting HCPs with the development of national guidelines.

TRACK 3

Policy & Advocacy

Dr. Elisabetta Balestro

Healthcare Professional

Dr. Balestro leads the outpatients Clinic for Interstitial Lung Disease at the University Hospital of Padova and processes the selection of candidates for the Lung Transplant programme. She worked to develop a regional network for referral of patients maintaining a multidisciplinary team. Her main research interests include interstitial lung disease and in particular Idiopathic Pulmonary Fibrosis.

Carlos Linés Millan

Patient Representative

Carlos Lines Millán was elected president of the EU-IPFF in 2016. He is also co-founder and president of the Spanish IPF association AFEFPI. Mr. Lines has been active in the health field, with a focus on IPF, over the past 10 years, leading on multiple initiatives at the local, national and EU levels.