The IPF Patient Summit is the first European event bringing together patients, healthcare professionals, policy makers and industry representatives.
The three-day event – designed by patients for patients – will be a unique platform to discuss research, person-centred care, policy and advocacy around Idiopathic Pulmonary Fibrosis (IPF) and Interstitial Lung Diseases (ILDs).
The Summit will bring together patient groups, healthcare professionals, policy makers, as well as industry representatives to open the dialogue with a wide range of stakeholders who aspire to make patient centricity and patient involvement a priority. This Summit represents an opportunity to magnify the patient voice and experience.
The Summit is organised by the European IPF and Related Disorders Federation, a non-profit body that brings together European national patient associations to fight for equal access to treatment and information. Established in 2016, the EU-IPFF has grown from a newly established association to a trusted resource for the European IPF community, and is now the convener of the first pan-European IPF Patient Summit.
The IPF Summit is endorsed by the European Reference Network on Rare Pulmonary Diseases (ERN-LUNG).
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