Saturday, April 25
11:30 – 13:00
Non-pharmacological management of IPF/ILD and evaluation for lung transplant
Management of patients with IPF includes more than pharmacological treatment, like for instance oxygen therapy, rehabilitation, management of dyspnea and transplantation.
Oxygen therapy is prescribed to IPF patients with chronic respiratory insufficiency i.e. low oxygen content in the blood when breathing room air. For many oxygen users, the first prescription of oxygen represents a new phase of the disease that is now suddenly much more visible; at the same time, oxygen also represents a worsening of the disease. Besides the visibility, oxygen therapy may be related to practical issues like “can I visit friends and family or go by car with my oxygen, or can I fly on holiday?” “What sort of equipment exists and does oxygen improve my breathlessness or help me in other ways?” In this session you will hear about the lived experiences with oxygen from a patient and also learn about the aim and scientific evidence behind oxygen therapy.
Living with a chronic progressive fibrotic lung disease is often related to debilitating symptoms and anxiety, depression and fear. How do you cope with these feelings and how can one maintain social relationships with family, friends and society without isolation? As a relative, what can you do to help your loved one? Are there any tools to be used when the disease progress in order better to handle fear and anxiety?
Also, if evaluated and even listed for lung transplantation, many thoughts and considerations are often present. How to live with the fear and hope?
Lung transplantation is a treatment that unfortunately is limited to a minority of IPF patients. In this session we will discuss the ethical aspects related to lung transplantation, the selection of lung transplant recipients and the benefits and risks. What is the medical background and what factors and comorbidities are considered during a transplant evaluation? Finally, a transplant IPF patient will tell you of his experience with lung transplant evaluation and about living with new lungs.
- Oxygen therapy
- The psychological aspects of living with a chronic progressive fibrotic lung disease like IPF
- The benefits and risks of lung transplantation
Inspiring talks followed by a debate with the audience
More coming soon
Please note that the programme is still updated on a regular basis until finalised.