Parallel
Session
Saturday, April 25
09:45 – 11:15
Room:
TBC

Session Leads

Dr. Wim Wyuts

Associate Professor at the Catholic University of Leuven, Belgium

Ruth Cordova Martin

Asociación de Familiares y Enfermos de Fibrosis Pulmonar Idiopática (AFEFPI) representative

Improving access to care for ILD patients

The objective of this session is to explain the need of a health care holistic approach for ILD patients. This session will highlight the need to provide expertise and knowledge during all stages of the disease; from prevention, through early diagnosis, access to treatments – pharmacological /non pharmacological -, to palliative care in the final stages of the disease. In addition, this session will highlight the impact on the quality of health care of an increasingly personalised and “human” medicine, the comprehensive approach of patients, and the presence of multidisciplinary teams. Lastly, this session will highlight the role of health policies in improving health care for ILD patients.

Key Topics

  • The “Voice of Patients” in Europe through the “Written Declaration on IPF”.
  • Highlights of the “EU-IPFF Benchmarking Report” and a summary of the “state of the art” in Europe.
  • Success stories on the aspect of humanisation and personalisation of medicine for a more patient focused health care.
  • European and local initiatives promoted by the European Union and Member States to improve access to care for rare diseases patients in general and ILD patients in particular (for example the European Reference Networks).

Session Format

A formal presentation in combination with a moderated panel discussion.

Speakers

Announced Soon

 Please note that the programme is still updated on a regular basis until finalised.