Saturday, April 25
09:45 – 11:15
Improving access to care for ILD patients
The objective of this session is to explain the need of a health care holistic approach for ILD patients. This session will highlight the need to provide expertise and knowledge during all stages of the disease; from prevention, through early diagnosis, access to treatments – pharmacological /non pharmacological -, to palliative care in the final stages of the disease. In addition, this session will highlight the impact on the quality of health care of an increasingly personalised and “human” medicine, the comprehensive approach of patients, and the presence of multidisciplinary teams. Lastly, this session will highlight the role of health policies in improving health care for ILD patients.
- The “Voice of Patients” in Europe through the “Written Declaration on IPF”.
- Highlights of the “EU-IPFF Benchmarking Report” and a summary of the “state of the art” in Europe.
- Success stories on the aspect of humanisation and personalisation of medicine for a more patient focused health care.
European and local initiatives promoted by the European Union and Member States to improve access to care for rare diseases patients in general and ILD patients in particular (for example the European Reference Networks).
A formal presentation in combination with a moderated panel discussion.
Please note that the programme is still updated on a regular basis until finalised.