Parallel
Session
Saturday, April 25
15:15 – 16:45
Room:
TBC

Session Leads

Dr. Francesco Bonella

Associate Professor of Medicine and Head of the Division for Interstitial and Rare Lung Disease, Department of Pneumology at the Ruhrlandklinik University Hospital Essen, Germany

Georgi Kostov

Pulmonary Hypertension Association Europe Representative

The 2030 EU Agenda on rare diseases

The objective of this session is to discuss the unmet needs and possible strategies to improve care of patients with rare lung diseases in Europe. Emphasis will be given to European Reference Networks (ERNs) and their crucial role in implementing cross border healthcare care, research and educational networking. An overview on ongoing research calls and projects in rare lung diseases will also be provided.

Key Topics

Cross border care will be the centre of the debate, but attention to registries, biobanks and research collaborations will be emphasised. A putative 10 years agenda on rare lung diseases in Europe will be discussed.

Session Format

Short input presentations followed by a moderated audience debate together with a panel discussion.

Speakers

Dr. Francesco Bonella

Associate Professor of Medicine and Head of the Division for Interstitial and Rare Lung Disease, Department of Pneumology at the Ruhrlandklinik University Hospital Essen, Germany

More coming soon

 Please note that the programme is still updated on a regular basis until finalised.