Our

Sponsors

Our

Endorsers

We are proud to announce that the European IPF Patient Summit 2020 is Patients Included™. This means that we are committed to incorporating the experience of patients as experts in living with their condition, whilst ensuring that they are neither excluded nor exploited.

The Patients Included™ status is based on meeting all five of the charter’s clauses:

  1. Patients participate in the co-creation, delivery, and review of the resources produced.
  2. The disability requirements of participants are accommodated.
  3. Patients are provided with the necessary support to fully contribute.
  4. All resources must be freely accessible either in print and/or digitally from the internet or via a mobile app.
  5. All resources must be patient-centred, free of jargon and undefined acronyms, and prepared in plain language.

For more information, visit the Patients Included™ website. (https://patientsincluded.org/)

EU-IPFF Members

Association Belge contre la Fibrose
Pulmonaire Idiopathique (BE)

Belgische verenigingvoor
longfibrose (BE)

IPF Bulgaria (BG)

Lungenfibrose e.V. (DE)

Association Pierre Enjalran Fibrose
Pulmonaire Idiopathique (FR)

Hellenic Pulmonary
Fibrosis Association (GR)

Magyar Tüdőfibrózis Egyesület (HU)

Irish Lung
Fibrosis Association (IE)

FIMARP (IT)

AMA Fuori dal Buio (IT)

Longfibrose
Patiëntenvereniging (NL)

IPF Polish Society (PL)

Asociación de Familiares y
Enfermosde Fibrosis Pulmonar
Idiopática (ES)

Action for
Pulmonary Fibrosis (UK)

British
Lung Foundation (UK)

Pulmonary Fibrosis Trust (UK)